Rare Disease Day.

Plain English Breakdown

Checked against official source text during the last sync.

Rare Disease Day

This law designates February 28, 2025, as Rare Disease Day to recognize the importance of rare diseases and support efforts for better diagnosis and treatment.

What This Bill Does

• Designates February 28, 2025, as Rare Disease Day.
• Recognizes the importance of improving awareness about rare diseases.
• Encourages accurate and early diagnosis of rare diseases.
• Supports national and global efforts to develop effective treatments for rare diseases.

Who It Names or Affects

• People with rare diseases
• Healthcare providers who treat people with rare diseases

Terms To Know

Rare Disease Day

A day designated to recognize the importance of rare diseases and support efforts for better diagnosis and treatment.

Limits and Unknowns

• The bill does not provide specific actions or funding for rare disease research.
• It is unclear how the recognition will be implemented or promoted.

Official Summary Text

ACR 33, Zbur.
Rare Disease Day.
This measure would designate February 28, 2025, as Rare Disease Day and, with respect to rare diseases and disorders, would recognize the importance of improving awareness, encouraging accurate and early diagnosis, and supporting national and global efforts to develop effective treatments, diagnostics, and cures.

Current Bill Text

Download Bill PDF