HCR32 • 2025

RECOGNIZING MAY 2025 AS "MYOSITIS AWARENESS MONTH" IN THE STATE OF DELAWARE.

Passed Legislature

This bill passed both chambers and reached final enrollment, even if later executive action is not shown here.

Sponsor: Romer
Last action: 2025-04-17
Official status: Passed 4/17/25
Effective date: Not listed

Plain English Breakdown

The bill is a concurrent resolution, which typically recognizes an issue but does not have the force of law or allocate funds unless specified elsewhere.

Recognizing May 2025 as Myositis Awareness Month in Delaware

This bill officially names May 2025 as a time to learn about and support people with myositis, a rare muscle disease.

What This Bill Does

Designates May 2025 as Myositis Awareness Month in the state of Delaware.
States that myositis is a group of autoimmune diseases causing chronic inflammation, severe weakness, pain, fatigue, and disability.
Notes that many people wait three to five years for a correct diagnosis because the disease is rare and complex.
Recognizes The Myositis Association's campaign to get all 50 states to acknowledge this month.
Encourages residents to learn about myositis, support those affected by it, and promote research.

Who It Names or Affects

Residents of the state of Delaware
People living with myositis and their families

Terms To Know

Myositis: A rare group of autoimmune diseases that cause chronic inflammation in muscles, leading to weakness, pain, fatigue, and disability.
Autoimmune disease: An illness where the body's immune system mistakenly attacks its own healthy tissues.

Limits and Unknowns

This resolution does not create new laws or spend money.
The text states that no further action is required by the General Assembly after passage.

Bill History

2025-04-17 Delaware General Assembly
Passed By Senate. Votes: 19 YES 2 ABSENT
2025-04-16 Delaware General Assembly
Introduced in House
2025-04-16 Delaware General Assembly
Passed in House by Voice Vote

Official Summary Text

RECOGNIZING MAY 2025 AS "MYOSITIS AWARENESS MONTH" IN THE STATE OF DELAWARE.
This resolution designates May 2025 as Myositis Awareness Month in Delaware to recognize and raise awareness of myositis, a rare neuromuscular disease. It highlights the efforts of The Myositis Association’s Proclamation 50 campaign, which seeks recognition in all 50 states. The resolution encourages public education, support for affected individuals, and further research into myositis.

Current Bill Text

Read the full stored bill text

Legislation Document

SPONSOR:

Rep. Romer & Rep. Gorman & Sen. Sokola

Reps. Bolden, Heffernan, K. Johnson, Ortega, Ross Levin, Harris; Sens. Hoffner, Huxtable, Mantzavinos, Pettyjohn, Wilson

HOUSE OF REPRESENTATIVES

153rd GENERAL ASSEMBLY

HOUSE CONCURRENT RESOLUTION NO. 32

RECOGNIZING MAY 2025 AS "MYOSITIS AWARENESS MONTH" IN THE STATE OF DELAWARE.

WHEREAS, myositis is a rare and debilitating group of autoimmune diseases that cause chronic inflammation of the muscles, leading to severe muscle weakness, pain, fatigue, and disability, affecting approximately 50,000 to 75,000 people in the United States; and

WHEREAS, there are several forms of myositis, including dermatomyositis, polymyositis, necrotizing myopathy, sporadic inclusion body myositis, and juvenile myositis, all of which impact patients differently and require further research for effective treatments; and

WHEREAS, myositis is often misdiagnosed or undiagnosed due to its rarity and complexity, with studies indicating that the average time to diagnosis can be three to five years, leading to delayed treatment and increased burden on individuals affected by the disease; and

WHEREAS, early diagnosis and intervention are crucial to improving outcomes for individuals affected by myositis; however, the disease remains underdiagnosed and misunderstood by both the general public and medical professionals, highlighting the need for increased awareness, education, and research to advance early detection, expand treatment options, and ultimately find a cure for myositis; and

WHEREAS, The Myositis Association (TMA) and other advocacy groups provide vital support, education, and resources for individuals living with myositis and their families, while also increasing awareness, advocating for better healthcare policies, and advancing research into the causes and treatments of myositis; and

WHEREAS, it is important to recognize the resilience and strength of those affected by myositis and to support ongoing efforts to improve their quality of life through research, awareness, and community support; and

WHEREAS, May is recognized as Myositis Awareness Month across the United States, providing an opportunity to educate the public and policymakers about this rare disease and to encourage further research and funding for treatment and support services.

NOW, THEREFORE,

BE IT RESOLVED that the House of Representatives of the 153rd General Assembly of the State of Delaware, the Senate concurring therein, hereby designates May 2025 as Myositis Awareness Month in Delaware and encourages residents to learn more about myositis, support those affected, and promote further research into this debilitating disease.

SYNOPSIS

This resolution designates May 2025 as Myositis Awareness Month in Delaware to recognize and raise awareness of myositis, a rare neuromuscular disease. It highlights the efforts of The Myositis Association’s Proclamation 50 campaign, which seeks recognition in all 50 states. The resolution encourages public education, support for affected individuals, and further research into myositis.