SB1554 • 2026

Public Records/Experimental Treatment Outcomes

Healthcare

Passed Legislature

This bill passed both chambers and reached final enrollment, even if later executive action is not shown here.

Sponsor: Burgess
Last action: 2026-03-13
Official status: Senate - Died in Health Policy
Effective date: On the sam

Plain English Breakdown

The official source material does not provide specific details about potential harm from disclosing health data or the exact requirements for publishing reports.

Public Records/Experimental Treatment Outcomes

This bill makes certain health information about experimental treatments confidential and exempt from public records laws.

What This Bill Does

Makes specific health data in reports about experimental treatment outcomes private.
Exempts this health data from being released as public records under Florida law.

Who It Names or Affects

Patients who receive experimental treatments for terminal conditions or life-threatening rare diseases
The Florida Department of Health, which publishes reports about these treatments

Terms To Know

Experimental treatment outcomes: Results from using new medical treatments that are not yet widely accepted or approved.
Public records requirements: Rules that require government agencies to make certain information available to the public.

Limits and Unknowns

The bill only applies if similar legislation (SB ____ or similar) is passed in the same session.
It does not specify what happens if SB ____ or similar legislation is not adopted.

Bill History

2026-03-13 Senate
• Died in Health Policy
2026-01-22 Senate
• Introduced
2026-01-16 Senate
• Referred to Health Policy; Appropriations Committee on Health and Human Services; Appropriations
2026-01-09 Senate
• Filed

Official Summary Text

Public Records/Experimental Treatment Outcomes; Providing an exemption from public records requirements for certain information contained in a public report published by the Department of Health relating to experimental treatment outcomes and safety signals; providing a statement of public necessity, etc.

Current Bill Text

Read the full stored bill text

Florida Senate
-
2026

SB 1554

By
Senator Burgess

23-01615A-26 20261554__
1 A bill to be entitled
2 An act relating to public records; amending s.
3 499.0295, F.S.; providing an exemption from public
4 records requirements for certain information contained
5 in a public report published by the Department of
6 Health relating to experimental treatment outcomes and
7 safety signals; providing a statement of public
8 necessity; providing a contingent effective date.
9
10 Be It Enacted by the Legislature of the State of Florida:
11
12 Section 1. Paragraph (c) of subsection (6) of section
13 499.0295, Florida Statutes, as amended by SB ____, 2026 Regular
14 Session, is amended to read:
15 499.0295 Experimental treatments for terminal conditions
16 and life-threatening rare diseases.—
17 (6)
18 (c) The department shall annually publish a public report
19 of experimental treatment outcomes and safety signals in the
20 aggregate.
The health information and proprietary pricing

21
information contained in the report is confidential and exempt

22
from s. 119.07(1) and s. 24(a), Art. I of the State

23
Constitution.

24 Section 2.
The Legislature finds that it is a public

25
necessity that the health information and proprietary pricing

26
information contained in the annual public report of

27
experimental treatment outcomes and safety signals under s.

28
499.0295, Florida Statutes, be made confidential and exempt from

29
s. 119.07(1), Florida Statutes, and s. 24(a), Article I of the

30
State Constitution. The Legislature finds that the release of

31
such information could harm patients with terminal conditions or

32
life-threatening rare diseases by exposing extremely sensitive

33
personal health data. The Legislature further finds that

34
patients who pursue experimental treatments under the Promising

35
Pathways Act have a strong expectation of privacy regarding

36
their medical information and that the potential harm resulting

37
from disclosure of such information outweighs any public benefit

38
that may be derived from its release.

39 Section 3. This act shall take effect on the same date that
40 SB ____ or similar legislation takes effect, if such legislation
41 is adopted in the same legislative session or an extension
42 thereof and becomes a law.