Read the full stored bill text
Florida Senate
-
2026
CS for SB 1686
By
the Committee on Health Policy; and Senator Calatayud
588-02794-26 20261686c1
1 A bill to be entitled
2 An act relating to public records; amending s.
3 1004.4352, F.S.; providing an exemption from public
4 records requirements for certain records and personal
5 identifying information submitted to the Parkinson’s
6 Disease Registry; providing for future legislative
7 review and repeal; providing a statement of public
8 necessity; providing a contingent effective date.
9
10 Be It Enacted by the Legislature of the State of Florida:
11
12 Section 1. Paragraph (f) is added to subsection (5) of
13 section 1004.4352, Florida Statutes, as created by SB 1684, 2026
14 Regular Session, to read:
15 1004.4352 Parkinson’s disease research.—
16 (5) PARKINSON’S DISEASE REGISTRY.—Subject to a specific
17 appropriation, the department shall contract with the consortium
18 to establish and maintain a Parkinson’s Disease Registry to
19 ensure that the Parkinson’s disease data required to be
20 submitted under paragraph (a) is maintained and available for
21 use for research to advance therapies, improve patient outcomes,
22 and find potential cures for the disease. The department
23 contract must require the consortium to use a nationally
24 recognized platform to collect data from physicians as required
25 in paragraph (a).
26
(f)
All records and personal identifying information
27
relating to
persons
diagnosed with or treated for
Parkinson’s
28
disease
which is submitted to the
registry
under this
sub
section
29
are confidential and exempt from s. 119.07(1) and s. 24(a), Art.
30
I of the State Constitution
, except that
:
31
1.
Release may be made with the written consent of persons
32
to whom the information applies
.
33
2.
The department or
the consortium
may contact individuals
34
for the purpose of epidemiologic
al
investigation and monitoring,
35
provided information that is confidential under this
sub
section
36
is not further disclosed
.
37
3.
The department may
enter into a data-sharing agreement
38
with any other governmental agency or
entity
for the purpose of
39
medical or scientific research, provided such governmental
40
agency or
entity does
not further disclose information that is
41
confidential under this
sub
section
.
42
43
This
paragraph
is subject to the Open Government Sunset Review
44
Act in accordance with s. 119.15 and shall stand repealed on
45
October 2, 2031, unless reviewed and saved from repeal through
46
reenactment by the Legislature.
47 Section 2.
The Legislature finds that it is a public
48
necessity
that
all records and personal identifying information
49
relating to
persons
diagnosed with or treated for
Parkinson’s
50
disease
which is submitted to the
Parkinson’s Disease Registry
51
pursuant to s.
1004.4352(5)
, Florida Statutes,
be made
52
confidential and exempt from s. 119.07(1), Florida Statutes, and
53
s. 24(a), Article I of the State Constitution. The Department of
54
Health
and the University of South Florida’s
Consortium for
55
Parkinson’s Disease Research
are
unable to effectively implement
56
the legislative purpose of the
Parkinson’s Disease Registry
,
57
created under s.
s. 1004.4352(5), Florida Statutes
, without
58
access to these records and information, which include personal
59
medical information, the disclosure of which would violate
60
federal patient privacy laws, including the Health Insurance
61
Portability and Accountability Act of 1996. Therefore, the
62
Legislature finds that it is a public necessity to make such
63
records and information held by the department confidential and
64
exempt to protect the privacy rights of
persons
diagnosed with
65
and treated for
Parkinson’s disease
in this state and promote
66
the effective administration of the department’s epidemiological
67
research and tracking activities.
68 Section 3. This act shall take effect on the same date that
69 SB 1684 or similar legislation takes effect, if such legislation
70 is adopted in the same legislative session or an extension
71 thereof and becomes a law.