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Full Text of HB5129
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HB5129 - 104th General Assembly
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104TH GENERAL ASSEMBLY
State of Illinois
2025 and 2026
HB5129
Introduced 2/10/2026, by Rep. Charles Meier
SYNOPSIS AS INTRODUCED:
New Act
Creates the Custody Relinquishment Prevention Involving Children with
Developmental Disabilities Act. Provides that the Act establishes a
pathway for families on the verge of seeking services for their child's
developmental disability through relinquishment of parental custody to the
Department of Children and Family Services, despite the absence of abuse
or neglect, to receive services through the appropriate State
child-serving agency. Requires the Department of Children and Family
Services, the Department of Human Services, the Department of Healthcare
and Family Services, the Illinois State Board of Education, the Department
of Juvenile Justice, and the Department of Public Health to enter into an
interagency agreement for the purpose of preventing children and youth
with developmental disabilities who are not otherwise abused or neglected
from entering the custody or guardianship of the Department of Children
and Family Services solely for purposes of receiving specialized services
and supports to address the child's or youth's needs. Provides that under
the interagency agreement, the listed agencies shall establish an
interagency clinical team to review cases of children and youth with
developmental disabilities who live at home with their families and are at
risk of relinquishment, and to connect the child or youth and his or her
family with the appropriate services, treatment, and support to prevent
custody relinquishment to the Department of Children and Family Services.
Contains provisions on what issues must be addressed in the interagency
agreement; annual outcomes and data reports to the General Assembly; and
other matters. Requires the listed agencies to adopt rules providing that
any employee of that Department who encourages a parent, guardian, or
other responsible adult to relinquish custody of a child with a
developmental disability solely to access specialized services and
supports through the appropriate State child-serving agency, despite the
absence of abuse or neglect, is subject to termination.
LRB104 17882 KTG 31318 b
A BILL FOR
HB5129
LRB104 17882 KTG 31318 b
1
AN ACT concerning State government.
2
Be it enacted by the People of the State of Illinois,
3
represented in the General Assembly:
4
Section 1.
Short title.
This Act may be cited as the
5
Custody Relinquishment Prevention Involving Children with
6
Developmental Disabilities Act.
7
Section 5.
Purpose.
This Act establishes a pathway for
8
families on the verge of seeking services for their child's
9
developmental disability through relinquishment of parental
10
custody to the Department of Children and Family Services,
11
despite the absence of abuse or neglect, to receive services
12
through the appropriate State child-serving agency. This
13
pathway shall be outlined in an interagency agreement between
14
all the relevant State agencies.
15
Section 10.
Definitions.
As used in this Act:
16
"Child or youth at risk of custody relinquishment" means a
17
child or youth with a developmental disability whose parents
18
or guardians are unable to properly manage the child's or
19
youth's complex medical, developmental, and social needs and
20
believe relinquishment is the only option to secure the
21
specialized services and supports necessary to promote the
22
child's or youth's well-being and maintain family stability,
HB5129
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LRB104 17882 KTG 31318 b
1
and there is no evidence of abuse or neglect.
2
"Developmental disability" has the same meaning ascribed
3
to that term in Section 1-106 of the Mental Health and
4
Developmental Disabilities Code.
5
"Family income" means the sum of a family's annual
6
earnings and cash benefits from all sources before taxes, less
7
payments made for child support.
8
Section 15.
Interagency agreement.
In order to intercept
9
and divert children and youth at risk of custody
10
relinquishment to the Department of Children and Family
11
Services, within 180 days after the effective date of this
12
Act, the Department of Children and Family Services, the
13
Department of Human Services, the Department of Healthcare and
14
Family Services, the Illinois State Board of Education, the
15
Department of Juvenile Justice, and the Department of Public
16
Health shall enter into an interagency agreement for the
17
purpose of preventing children and youth with developmental
18
disabilities who are not otherwise abused or neglected from
19
entering the custody or guardianship of the Department of
20
Children and Family Services solely for purposes of receiving
21
specialized services and supports to address the child's or
22
youth's needs. The interagency agreement shall require the
23
agencies listed in this Section to establish an interagency
24
clinical team to review cases of children and youth with
25
developmental disabilities who live at home with their
HB5129
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LRB104 17882 KTG 31318 b
1
families and are at risk of relinquishment, and to connect the
2
child or youth and his or her family with the appropriate
3
services, treatment, and support to prevent custody
4
relinquishment to the Department of Children and Family
5
Services.
6
The interagency agreement, among other things, shall
7
address all of the following:
8
(1) Requiring families with private health insurance
9
to exhaust their private insurance coverage.
10
(2) Establishing cost sharing for services received
11
for families whose income exceeds the federal poverty
12
level that would qualify them for Medicaid, based on the
13
family's ability to pay.
14
(3) For children or youth who are not otherwise
15
Medicaid eligible, performing a family and medical
16
assessment and developing a care plan for the child or
17
youth and the family with the goal of determining what
18
services and supports are necessary to (i) address the
19
child's or youth's specific developmental disability, (ii)
20
promote and maintain family stability and permanence, and
21
(iii) prevent custody relinquishment to the Department of
22
Children and Family Services when there is no abuse or
23
neglect.
24
(4) Set criteria for short-term respite care services,
25
including intensive community-based therapeutic
26
recreational activities or a short-term out-of-home
HB5129
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LRB104 17882 KTG 31318 b
1
placement, as the child or youth's treatment plan is being
2
developed.
3
Section 20.
Outcomes and data reported annually to the
4
General Assembly.
5
(a) The Department of Children and Family Services shall
6
submit an annual report to the General Assembly which includes
7
the following with respect to the time period covered by the
8
report:
9
(1) The number of children and youth who were
10
relinquished to the Department of Children and Family
11
Services for purposes of receiving treatment for a
12
developmental disability.
13
(2) The length of treatment and the status of children
14
and youth at the termination of services.
15
(b) The interagency agreement required under Section 15
16
shall require reporting to the General Assembly with respect
17
to the following criteria:
18
(1) The number of children and youth who
19
were intercepted during the reporting period and the
20
services and supports they were connected with to prevent
21
custody relinquishment and address the child's or youth's
22
specific needs.
23
(2) The duration of the specialized services and
24
supports the child or youth received in order to maintain
25
his or her well-being and promote family stability and
HB5129
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LRB104 17882 KTG 31318 b
1
permanence.
2
(3) Following the connection to services and supports
3
through the most appropriate State agency to address the
4
child's or youth's specific needs, the number of families
5
that failed to stabilize and turned to the Department of
6
Children and Family Services for services, and that
7
relinquished custody or whose child was adjudicated a
8
dependent minor pursuant to subdivision (c) of paragraph
9
(1) of Section 2-4 of the Juvenile Court Act of 1987.
10
Section 25.
Cause for termination.
The Departments of
11
Children and Family Services, Human Services, Healthcare and
12
Family Services, Juvenile Justice, and Public Health shall
13
adopt rules providing that any employee of that Department who
14
encourages a parent, guardian, or other responsible adult to
15
relinquish custody of a child with a developmental disability
16
solely to access specialized services and supports through the
17
appropriate State child-serving agency, despite the absence of
18
abuse or neglect, is subject to termination.
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