ALS AWARENESS MONTH

Illinois General Assembly - Full Text of HR0609

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Full Text of HR0609

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HR0609 - 104th General Assembly

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HR0609
LRB104 19159 LAW 32604 r
1
HOUSE RESOLUTION

2

WHEREAS, A greater awareness of fatal diseases that
3
continue to plague our population is needed; and

4

WHEREAS, Amyotrophic lateral sclerosis (ALS), also known
5
as Lou Gehrig's disease, is a devastating and fatal
6
neurodegenerative condition in which a person's brain loses
7
connection with the muscles due to the destruction of motor
8
neurons; and

9

WHEREAS, The destruction of motor neurons that ALS causes
10
leads to complete paralysis and, in most cases, death within
11
five years of diagnosis; and

12

WHEREAS, Though their minds are unaffected, people living
13
with ALS lose the ability to walk, talk, eat, and eventually
14
breathe; they are confined to a fate where, as their
15
independence fades, they must rely entirely on caregivers to
16
provide round-the-clock aid as the disease reaches its more
17
advanced stages; and

18

WHEREAS, ALS currently has no known cure, and the exact
19
causes are unknown; and

20

WHEREAS, Military veterans are disproportionately affected

HR0609
- 2 -
LRB104 19159 LAW 32604 r
1
by ALS, and multiple studies show that they are more likely to
2
develop and die from the disease than the general population;
3
and

4

WHEREAS, Securing access to new therapies, durable medical
5
equipment, and communication technologies is of vital
6
importance to people living with ALS; clinical trials also
7
play a pivotal role in evaluating new treatments, enhancing
8
quality of life, and fostering assistive technologies for
9
those living with ALS; and

10

WHEREAS, To truly confront ALS, awareness must be raised,
11
and policies should reflect the urgent needs of those living
12
with this disease as increased advocacy and legislative
13
support are critical to advancing research, easing the burden
14
on families, and ultimately finding a cure; and

15

WHEREAS, Recognizing ALS Awareness Month provides an
16
opportunity to increase public awareness of the dire
17
circumstances of people living with ALS, acknowledge the
18
terrible impact this disease has on those individuals and
19
their families, and support research to eradicate this
20
disease; therefore, be it

21

RESOLVED, BY THE HOUSE OF REPRESENTATIVES OF THE ONE
22
HUNDRED FOURTH GENERAL ASSEMBLY OF THE STATE OF ILLINOIS, that

HR0609
- 3 -
LRB104 19159 LAW 32604 r
1
we declare May 2026 as ALS Awareness Month in the State of
2
Illinois, and we call upon all Illinoisans to join in
3
supporting amyotrophic lateral sclerosis (ALS) research and
4
advocating for increased funding and to stand in solidarity
5
with those affected by this relentless disease; and be it
6
further

7

RESOLVED, That we express our support for the ALS
8
community as they seek to increase awareness, prioritize
9
research funding, and secure additional caregiving support.

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