IGAN AWARENESS DAY

Illinois General Assembly - Full Text of HR0659

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HR0659
LRB104 20572 LAW 34055 r
1
HOUSE RESOLUTION

2

WHEREAS, More than 1 in 7 American adults are estimated to
3
have chronic kidney disease (CKD), yet as many as 9 in 10
4
American adults with CKD do not know they have it; and

5

WHEREAS, At least 15% of Medicare beneficiaries have been
6
diagnosed with CKD; and

7

WHEREAS, While the two most common causes of kidney
8
disease are hypertension and heart disease, the third-leading
9
cause of kidney disease is glomerulonephritis, often caused by
10
rare, immune-mediated kidney diseases such as IgA nephropathy
11
(IgAN); and

12

WHEREAS, Patients with glomerular diseases frequently
13
advance to more costly and more debilitating later stages of
14
kidney disease, including end-stage renal disease (ESRD), more
15
quickly than patients with CKD in general, with estimates
16
suggesting that rare kidney diseases make up 5 to 10% of CKD
17
patients but account for approximately 25% of patients
18
receiving treatment for kidney failure; and

19

WHEREAS, Patients often face delays in being diagnosed
20
with IgAN and other immune-mediated kidney diseases, owing to
21
the difficulty of the rare disease diagnostic odyssey, the

HR0659
- 2 -
LRB104 20572 LAW 34055 r
1
limited number of nephrology providers, and a lack of
2
awareness about the causes of kidney disease; and

3

WHEREAS, IgAN is twice as likely to appear in men as women,
4
can occur at any age but most likely strikes people in their
5
twenties and thirties, and is more common in Asians and white
6
people; and

7

WHEREAS, Kidney disease, including IgAN, presents a
8
significant burden to the health and lives of patients and
9
their families, and it also presents great challenges for the
10
healthcare system and healthcare costs of Illinois, with
11
estimates suggesting that patients with IgAN-attributed ESRD
12
have health costs exceeding $63,000 per year; and

13

WHEREAS, While the federal Medicare program covers the
14
costs of dialysis for many patients with ESRD, 45% of ESRD
15
patients are dually eligible for Medicare and Medicaid, and
16
ESRD is a significant source of disability, with ESRD patients
17
employed at only one-fifth the rate of the general population;
18
and

19

WHEREAS, Kidney disease patients are entering a new era of
20
hope, including for rare diseases, with multiple drugs now
21
approved by the Food and Drug Administration to slow the
22
progression of CKD and multiple drugs approved to slow the

HR0659
- 3 -
LRB104 20572 LAW 34055 r
1
progression of IgAN specifically, including innovative
2
immunology-based therapies, and many more clinical trials are
3
underway for such products; and

4

WHEREAS, There is growing recognition that early
5
identification of kidney disease and rare kidney diseases,
6
including through broader screening of patients with low-cost
7
serum creatine blood tests and urine albuminuria creatine
8
ratio tests, can slow the progression of kidney disease and
9
prevent or delay ESRD, including in patients with
10
immune-mediated kidney diseases; and

11

WHEREAS, Designating an IgAN Awareness Day not only
12
increases awareness of kidney disease and glomerular diseases
13
but also supports efforts to improve policies that may
14
increase access to screening, diagnosis, and treatment for
15
kidney disease and to provide hope and inspiration to
16
patients, caregivers, and advocates working tirelessly to
17
advance awareness and better care for kidney disease;
18
therefore, be it

19

RESOLVED, BY THE HOUSE OF REPRESENTATIVES OF THE ONE
20
HUNDRED FOURTH GENERAL ASSEMBLY OF THE STATE OF ILLINOIS, that
21
we declare May 14, 2026 as IgAN Awareness Day in the State of
22
Illinois to increase awareness among patients, providers, and
23
policymakers of kidney disease and glomerular diseases, and

HR0659
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LRB104 20572 LAW 34055 r
1
IgA nephropathy (IgAN) in particular.

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