CHOLESTATIC LIVER DISORDER RPT

Illinois General Assembly - Full Text of SB3045

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SB3045 - 104th General Assembly

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104TH GENERAL ASSEMBLY
State of Illinois
2025 and 2026
SB3045

Introduced 1/28/2026, by Sen. Sara Feigenholtz

SYNOPSIS AS INTRODUCED:

20 ILCS 2205/2205-45 new

Amends the Department of Healthcare and Family Services Law. Requires
the Department of Healthcare and Family Services to conduct a statewide
one-year pilot program that studies the prevalence of cholestatic liver
disorders associated with increased risk of end-stage liver disease among
women ages 35 through 64 who are recipients of medical assistance.
Requires the Department to collect the following information on study
participants: (1) key demographics such as age, genetic predispositions,
pre-existing conditions, and lifestyle factors that elevate the risk of
developing cholestatic liver disorders; (2) the number or percentage of
study participants who, despite being identified as high-risk, do not
follow through with referrals or treatment recommendations; (3) the number
of study participants who avoid referral and follow-up care or engage in
treatment avoidance; and (4) any other relevant information or issues
identified by the Department. Requires the Department to compile a report
on its findings at the end of the one-year study and include (i)
recommendations on how to increase awareness of cholestatic liver
disorders through screenings, genetic testing, and collaboration with
patient advocacy groups to raise public awareness and (ii) an analysis of
strategies and funding to increase screening and genetic testing for
cholestatic liver disorders. Provides that the Department shall submit the
report to the General Assembly no later than December 31, 2028. Effective
immediately.
LRB104 17643 KTG 31074 b

A BILL FOR

SB3045
LRB104 17643 KTG 31074 b
1

AN ACT concerning State government.

2

Be it enacted by the People of the State of Illinois,
3
represented in the General Assembly:

4

Section 5.
The Department of Healthcare and Family
5
Services Law of the Civil Administrative Code of Illinois is
6
amended by adding Section 2205-45 as follows:

7

(20 ILCS 2205/2205-45 new)
8

Sec. 2205-45.
Pilot program; cholestatic liver disorders
9
in women.

10

(a) The Department of Healthcare and Family Services shall
11
conduct a statewide one-year pilot program that studies the
12
prevalence of cholestatic liver disorders associated with
13
increased risk of end-stage liver disease among women ages 35
14
through 64 who are recipients of medical assistance under
15
Article V of the Illinois Public Aid Code. During the pilot
16
program, the Department shall collect the following
17
information on study participants:
18

(1) Key demographics such as age, genetic
19

predispositions, pre-existing conditions (such as, but not
20

limited to, autoimmune diseases and metabolic disorders)
21

and lifestyle factors that elevate the risk of developing
22

cholestatic liver disorders.
23

(2) The number or percentage of study participants

SB3045
- 2 -
LRB104 17643 KTG 31074 b
1

who, despite being identified as high-risk, do not follow
2

through with referrals or treatment recommendations.
3

(3) The number of study participants who avoid
4

referral and follow-up care or engage in treatment
5

avoidance.
6

(4) Other relevant information or issues identified by
7

the Department.

8

(b) At the end of the one-year pilot program, the
9
Department shall review the collected data and information and
10
compile it into a written report that includes:
11

(1) Recommendations on how to (i) increase awareness
12

of cholestatic liver disorders, including screenings and
13

genetic testing, and (ii) collaborate with patient
14

advocacy groups to raise public awareness through social
15

media, seminars, and community outreach initiatives.
16

(2) An analysis of strategies and funding to increase
17

screening and genetic testing for cholestatic liver
18

disorders. The analysis must include recommendations on
19

how to promote public-private partnerships to ensure
20

sustainable funding for genetic research and testing
21

infrastructure.
22

All information collected and reported shall be handled in
23
accordance with all applicable State and federal privacy laws
24
and regulations.
25

The Department of Healthcare and Family Services shall
26
submit the report to the General Assembly no later than

SB3045
- 3 -
LRB104 17643 KTG 31074 b
1
December 31, 2028.

2

Section 99.
Effective date.
This Act takes effect upon
3
becoming law.

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