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SB3554 • 2026

MEDICAID-BRAIN INJURY WAIVER

MEDICAID-BRAIN INJURY WAIVER

Passed Legislature

This bill passed both chambers and reached final enrollment, even if later executive action is not shown here.

Sponsor
David Koehler
Last action
2026-05-22
Official status
Rule 3-9(a) / Re-referred to Assignments
Effective date
Not listed

Plain English Breakdown

Using official source text because the generated explanation was unavailable or could not be confirmed against the official bill text.

MEDICAID-BRAIN INJURY WAIVER

MEDICAID-BRAIN INJURY WAIVER

What This Bill Does

  • MEDICAID-BRAIN INJURY WAIVER

Limits and Unknowns

  • This entry is temporarily using official source text because the generated explanation could not be confirmed against the official bill text during the last sync.

Bill History

  1. 2026-05-22 Illinois General Assembly

    Rule 3-9(a) / Re-referred to Assignments

  2. 2026-05-15 Illinois General Assembly

    Rule 2-10 Committee/3rd Reading Deadline Established As May 22, 2026

  3. 2026-04-30 Illinois General Assembly

    Added as Co-Sponsor Sen. Karina Villa

  4. 2026-04-24 Illinois General Assembly

    Rule 2-10 Committee/3rd Reading Deadline Established As May 15, 2026

  5. 2026-03-13 Illinois General Assembly

    Rule 2-10 Committee Deadline Established As April 24, 2026

  6. 2026-02-17 Illinois General Assembly

    Assigned to Appropriations- Health and Human Services

  7. 2026-02-05 Illinois General Assembly

    Filed with Secretary by Sen. David Koehler

  8. 2026-02-05 Illinois General Assembly

    First Reading

  9. 2026-02-05 Illinois General Assembly

    Referred to Assignments

Official Summary Text

MEDICAID-BRAIN INJURY WAIVER

Current Bill Text

Read the full stored bill text
Illinois General Assembly - Full Text of SB3554

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Full Text of SB3554

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Introduced

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104TH GENERAL ASSEMBLY
State of Illinois
2025 and 2026
SB3554

Introduced 2/5/2026, by Sen. David Koehler

SYNOPSIS AS INTRODUCED:

305 ILCS 5/5-70 new

Amends the Medical Assistance Article of the Illinois Public Aid
Code. Provides that, on and after January 1, 2027, certain services shall
be eligible for reimbursement at approved programs through the Brain
Injury waiver for eligible individuals over the age of 21, including, but
not limited to: (1) case management; (2) nursing services; (3) medical
oversight by consulting medical director; (4) physical therapy; and (5)
occupational therapy. Requires the Department of Human Services to
reimburse approved programs at the rates in effect for the Home and
Community-Based Services Waiver program most recently approved. Effective
January 1, 2027.
LRB104 19789 KTG 33239 b

A BILL FOR

SB3554
LRB104 19789 KTG 33239 b
1

AN ACT concerning State government.

2

Be it enacted by the People of the State of Illinois,
3
represented in the General Assembly:

4

Section 5.
The Illinois Public Aid Code is amended by
5
adding Section 5-70 as follows:

6

(305 ILCS 5/5-70 new)
7

Sec. 5-70.
Brain injury waiver services.
8

(a) Findings. The General Assembly finds that:
9

(1) Annually, over 141,000 new brain injuries are
10

sustained by children and adult Illinois residents.
11

(2) The State provides services and support for
12

individuals with brain injuries through the Persons with
13

Brain Injury waiver, which is part of the Home and
14

Community-Based Services Waiver and is operated by the
15

Department of Human Services' Division of Rehabilitation
16

Services. This program is administered by the Department
17

of Healthcare and Family Services. Day-to-day operations
18

are managed by the Department of Human Services' Division
19

of Rehabilitation Services. These services are offered for
20

individuals who are at risk of being placed in a nursing
21

facility for care due to functional limitations caused by
22

a brain injury.
23

(3) Individuals are eligible for Brain Injury waivers

SB3554
- 2 -
LRB104 19789 KTG 33239 b
1

if, among other requirements, they have an acquired brain
2

injury as documented by a physician or neurologist. This
3

includes traumatic brain injuries, infections, anoxia,
4

stroke, aneurysm, electrical injury, malignant or benign
5

tumors, neoplasm of the brain, and toxic encephalopathy.
6

(4) Twenty-two states currently offer care in the
7

community funding options for adults with brain injury who
8

require residential supports and services.
9

(5) Illinois does not currently offer reimbursement
10

for care to programs providing brain injury care services
11

for individuals over the age of 21. As a result, these
12

individuals must stop receiving care abruptly in their
13

current programs when they age out of eligibility for
14

reimbursement and must be transferred to a nursing home at
15

age 21, or transferred to another state that can seek
16

reimbursement from the State of Illinois for the provision
17

of services for this age group. This causes a disruption
18

in care and separation of families. Illinois Medicaid
19

funds are used to support these individuals in accessing
20

out-of-state care, resulting in funding going to
21

out-of-state providers and being paid at higher
22

out-of-state rates.
23

(b) As used in this Section, "approved programs" includes
24
programs authorized to provide care under the Medicaid Home
25
and Community-Based Services Waiver program.
26

(c) Notwithstanding any other provision of this Code to

SB3554
- 3 -
LRB104 19789 KTG 33239 b
1
the contrary, on and after January 1, 2027, the following
2
services shall be eligible for reimbursement at approved
3
programs through the Brain Injury waiver for eligible
4
individuals over the age of 21:
5

(1) Case management.
6

(2) Nursing services.
7

(3) Medical oversight by consulting medical director.
8

(4) Physical therapy.
9

(5) Occupational therapy.
10

(6) Speech language therapy.
11

(7) Behavioral intervention and therapy.
12

(8) Individual and family counseling.
13

(9) Life skills training, including community
14

re-access training.
15

(10) Residential habilitation.
16

(11) Day habilitation.
17

(d) The Department of Human Services shall reimburse
18
approved programs at the rates in effect for the Home and
19
Community-Based Services Waiver program most recently approved
20
under authority of Section 1915(c) of the Social Security Act.

21

Section 99.
Effective date.
This Act takes effect January
22
1, 2027.

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