ME AWARENESS DAY

Illinois General Assembly - Full Text of SR0667

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SR0667
LRB104 21097 MST 35244 r
1
SENATE RESOLUTION

2

WHEREAS, Myalgic Encephalomyelitis (ME), also known as
3
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS),
4
is a serious, complex, and chronic disease that affects
5
multiple body systems, including the neurological, immune, and
6
metabolic systems; and

7

WHEREAS, ME affects up to nine million Americans,
8
including over 100,000 Illinoisans, and is characterized by
9
symptoms such as post-exertional malaise, debilitating
10
fatigue, cognitive dysfunction, and immune and autonomic
11
nervous system dysregulation that substantially limit an
12
individual's ability to carry out ordinary daily activities;
13
and

14

WHEREAS, Approximately 25% of individuals affected by ME
15
are housebound or bedbound, an estimated 75% are unable to
16
sustain employment or education due to the severity of their
17
illness, and almost all people with ME experience profound
18
limitations in performing usual daily activities; and

19

WHEREAS, Individuals living with ME often experience a
20
significant decline in quality of life and may face challenges
21
accessing timely diagnosis, appropriate medical care,
22
workplace accommodations, and social support; and

SR0667
- 2 -
LRB104 21097 MST 35244 r
1

WHEREAS, ME remains widely underrecognized and
2
misunderstood, with up to 91% of people with ME remaining
3
undiagnosed and those with the diagnosis facing limited
4
treatment options and inadequate systemic supports, thereby
5
jeopardizing the safety, well-being, and economic security of
6
affected individuals and their families; and

7

WHEREAS, Due to limited public awareness and lingering
8
misconceptions about the nature and severity of ME, many
9
patients experience stigma, misunderstanding, and delays in
10
care; and

11

WHEREAS, The prevalence of ME has increased significantly
12
in the wake of the COVID-19 pandemic, with up to half of
13
individuals affected by Long COVID meeting diagnostic criteria
14
for ME; and

15

WHEREAS, ME affects an estimated 17 to 24 million people
16
worldwide, making it one of the most widespread yet least
17
understood chronic illnesses and underscoring the urgent need
18
for expanded research, medical education, and public
19
awareness; and

20

WHEREAS, Raising awareness of ME within Illinois promotes
21
understanding, research investment, and better health outcomes

SR0667
- 3 -
LRB104 21097 MST 35244 r
1
for the thousands of people affected; and

2

WHEREAS, Increased awareness and education about ME among
3
the public, health care providers, educators, employers, and
4
policymakers are essential to improving outcomes for those
5
affected and supporting ongoing research efforts; and

6

WHEREAS, May 12 is internationally recognized as ME
7
Awareness Day, honoring the strength and resilience of the ME
8
community and highlighting the need for increased
9
understanding, research investment, and comprehensive systems
10
of care and support; therefore, be it

11

RESOLVED, BY THE SENATE OF THE ONE HUNDRED FOURTH GENERAL
12
ASSEMBLY OF THE STATE OF ILLINOIS, that declare May 12, 2026 as
13
Myalgic Encephalomyelitis Awareness Day in the State of
14
Illinois; and be it further

15

RESOLVED, That we encourage increased public education and
16
awareness efforts regarding Myalgic Encephalomyelitis, support
17
for individuals and families affected by the disease, and
18
continued attention to research and health care initiatives
19
aimed at improving diagnosis, treatment, and quality of life
20
for those living with ME.

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