ALS AWARENESS MONTH

Illinois General Assembly - Full Text of SR0684

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SR0684 - 104th General Assembly

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SR0684
LRB104 21227 MST 35817 r
1
SENATE RESOLUTION

2

WHEREAS, Amyotrophic lateral sclerosis (ALS), known by
3
many as Lou Gehrig's disease, is a progressive fatal
4
neurodegenerative disease in which a person's brain loses
5
connection with the muscles, slowly taking away their ability
6
to walk, talk, eat, and eventually breathe; and

7

WHEREAS, ALS has no cure, and every 90 minutes, someone is
8
diagnosed with ALS and someone passes away from ALS; on
9
average, patients diagnosed with ALS only survive two to five
10
years from the time of diagnosis; and

11

WHEREAS, People who have served in the military are more
12
likely to develop ALS and die from the disease than those with
13
no history of military service; and

14

WHEREAS, Securing access to new therapies, durable medical
15
equipment, and communication technologies is of vital
16
importance to people living with ALS; and

17

WHEREAS, Clinical trials play a pivotal role in evaluating
18
new treatments, enhancing quality of life, and fostering
19
assistive technologies for those living with ALS; and

20

WHEREAS, This year marks the 12th anniversary of the Ice

SR0684
- 2 -
LRB104 21227 MST 35817 r
1
Bucket Challenge, and it is fitting to make a renewed
2
commitment to galvanize public awareness and support funding
3
leading to significant investments in ALS research; and

4

WHEREAS, The ALS Association, as the largest philanthropic
5
funder of ALS research globally, has committed over $154
6
million to support more than 550 projects across the United
7
States and 18 other countries; and

8

WHEREAS, The ALS community and researchers remain
9
unwaveringly committed to accelerating the pace of discovery,
10
fueled by the hope that one day ALS will be a livable disease
11
for everyone, everywhere; and

12

WHEREAS, Observing ALS Awareness Month increases the
13
public's awareness of the dire circumstances faced by people
14
living with ALS, acknowledges the terrible impact this disease
15
has, not only on the person but on his or her family and the
16
community, and recognizes the research being done to eradicate
17
this disease; therefore, be it

18

RESOLVED, BY THE SENATE OF THE ONE HUNDRED FOURTH GENERAL
19
ASSEMBLY OF THE STATE OF ILLINOIS, that we declare May 2026 as
20
ALS Awareness Month and urge all Americans to join in
21
supporting ALS research, advocating for increased funding, and
22
standing in solidarity with those affected by this relentless

SR0684
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LRB104 21227 MST 35817 r
1
disease.

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