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AN ACT relating to services for Alzheimer's and related dementias. 1
Be it enacted by the General Assembly of the Commonwealth of Kentucky: 2
Section 1. KRS 194A.601 is amended to read as follows: 3
(1) The Office of Dementia Services is established within the cabinet. The purpose of 4
the office is to oversee information and resources related to policy and services 5
affecting residents of Kentucky with dementia, and the caregivers and families of 6
the residents. 7
(2) The dementia services coordinator shall be a full -time, permanent employee and 8
shall be responsible for the staffing and operational details of the office. 9
(3) The dementia services coordinator shall prepare an annual report on the 10
operations of the office and council, which shall include but not be limited to a 11
progress update on the implementation of the Kentucky Alzheimer's and Related 12
Dementias State Plan and any state plan amendments or recommendations. The 13
report shall be submitted to the Legislative Research Commission for referral [A 14
report on the operations of the office shall be made to the secretary within ninety 15
(90) days of June 29, 2021. An annual rep ort on the operation of the office shall be 16
made] to the Interim Joint Committee on Health Services by December 1 of each 17
year. 18
(4)[(3)] The duties of the office shall include but not be limited to: 19
(a) Creating, implementing, and updating the Kentucky Alzheimer's and Related 20
Dementias State Plan; 21
(b) Coordinating and managing the Alzheimer's Disease and Related Disorders 22
Advisory Council; 23
(c) Assessing and analyzing dementia -specific data collected by th e cabinet, 24
including the behavioral risk factor surveillance system, and data from other 25
relevant departments and divisions; 26
(d) Evaluating of state-funded dementia services; 27
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(e) Identifying and supporting the development of dementia-specific trainings; 1
(f) Streamlining all applicable state government services to increase efficiency 2
and improve the quality of care in residential and home and community -based 3
settings; 4
(g) Identifying any duplicative services to eliminate all unnecessary costs; 5
(h) Identifying and applying for grant opportunities to expand the scope of 6
services while reducing state costs; and 7
(i) Completing other duties relevant to supporting policy development and 8
implementation to support individuals with dementia and their [ family] 9
caregivers. 10
Section 2. KRS 194A.603 is amended to read as follows: 11
(1) The Alzheimer's Disease and Related Disorders Advisory Council is created. The 12
council shall report directly to the office. 13
(2) The council shall be composed of the following sixteen (16)[fifteen (15)] members: 14
(a) The secretary of the Cabinet for Health and Family Services or his or her 15
designee; 16
(b) The commissioner of the Department for Aging and Independent Living or his 17
or her designee; 18
(c) The commissioner of the Department for Public Health or his or her designee; 19
(d) The commissioner of the Department for Medicaid Services or his or her 20
designee; 21
(e) The state long-term care ombudsman or his or her designee; 22
(f) The executive director of the Area Agencies on Aging or his or her designee; 23
(g) Two (2) unaffiliated individuals who are current or former unpaid 24
caregivers for individuals [One (1) individual who is the family caregiver of 25
an individual] living with Alzheimer's disease or another dementia, appo inted 26
by the Governor from a list of names of qualified persons submitted by any 27
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interested parties; 1
(h) One (1) individual who represents the residential long -term care industry, 2
appointed by the Governor from a list of names of qualified persons submitted 3
by any interested parties; 4
(i) One (1) individual who represents providers of adult day care services, 5
appointed by the Governor from a list of names of qualified persons submitted 6
by any interested parties; 7
(j) One (1) individual who represents the home care providers, appointed by the 8
Governor from a list of names of qualified persons submitted by any 9
interested parties; 10
(k) One (1) individual employed by and representing an organization that 11
advocates solely on behalf of physicians, appointed by the Go vernor from a 12
list of names of qualified persons submitted by any interested parties; 13
(l) One (1) individual employed by and representing an organization that 14
advocates solely on behalf of nurses, appointed by the Governor from a list of 15
names of qualified persons submitted by any interested parties; 16
(m) One (1) individual who conducts research regarding Alzheimer's disease or 17
other dementias, appointed by the Governor from a list of names of qualified 18
persons submitted by any interested parties; 19
(n) One (1 ) individual who represents an organization that advocates solely on 20
behalf of individuals living with Alzheimer's disease or other dementias, 21
appointed by the Governor from a list of names of qualified persons submitted 22
by any interested parties; and 23
(o) One (1) individual representing a statewide organization that advocates on 24
behalf of Kentuckians aged fifty (50) or older, appointed by the Governor 25
from a list of names of qualified persons submitted by any interested parties. 26
(3) Members who are not stat e employees shall be reimbursed for necessary and actual 27
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expenses. 1
(4) The council shall meet at least quarterly and at other such times as it determines 2
necessary to perform its duties. A majority of the members shall constitute a 3
quorum for the transaction of the council's business. 4
(5) The council shall: 5
(a) Elect its own chairperson and establish other officers and subcommittees as 6
needed to execute the duties of the council; 7
(b) Adopt bylaws and operate under its bylaws; 8
(c) By December 1, 2029, and by December 1 [Starting on July 1, 2021, and 9
repeating] every four (4) yea rs thereafter[after that date] , submit an updated 10
Kentucky Alzheimer's and Related Dementias State Plan to the Legislative 11
Research Commission for referral to the Interim Joint Committee on 12
Health Services [Governor for his or her approval and thereafter ma ke it 13
available to the General Assembly] . If the council determines that 14
amendments need to be made to the state plan, an amended Kentucky 15
Alzheimer's and Related Dementia State Plan may be presented to the 16
Legislative Research Commission for referral to t he Interim Joint 17
Committee on Health Services[Governor for review and approval]; 18
(d) Beginning December 1 of each year, develop and implement a year -long 19
initiative that advances a key area of the Kentucky Alzheimer's and Related 20
Dementias State Plan. The key area to be addressed each year shall be 21
determined by a vote of the council, unless otherwise provided by law. 22
Completed initiatives may be reviewed by the council annually. After review, 23
at the discretion of the council, completed initiatives may be u pdated as 24
necessary;[Starting on July 1, 2021, and repeating every year after that date, 25
submit an annual report on the implementation progress of the Kentucky 26
Alzheimer's and Related Dementias State Plan to the Governor. This annual 27
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report shall include a summary of the progress toward implementation of the 1
state plan and recommendations for amendments to the state plan;] and 2
(e) Serve in an advisory capacity to the Governor, the General Assembly, the 3
cabinet and all other state agencies on matters relatin g to the Kentucky 4
Alzheimer's and Related Dementias State Plan. The council shall review and 5
make recommendations regarding progress towards the goals of the state plan 6
and on progress in implementing resources and services to serve individuals 7
with dementia and related diseases across Kentucky in the future. 8
(6) Members shall serve for a term of two (2) years and may be reappointed. All 9
subsequent appointments or reappointments shall be for terms of two (2) years. If 10
an appointee resigns or is otherwise un able to complete the appointed term, the 11
Governor shall appoint a new individual whose expertise or experience satisfies the 12
vacated position within ninety (90) days. 13
Section 3. (1) Beginning December 1, 2026, the Alzhei mer's Disease and 14
Related Disorders Advisory Council, with support from the Office of Dementia Services, 15
shall develop and implement a health care provider toolkit on the early detection and 16
diagnosis of Alzheimer's and related disorders as the initial yea r-long initiative required 17
under subsection (5)(d) of Section 2 of this Act. The toolkit shall include but not be 18
limited to: 19
(a) Validated cognitive assessments, including during annual Medicare wellness 20
visits; 21
(b) Best practices for person-centered care planning, including but not limited to: 22
1. The Medicaid care plan billing code for individuals with cognitive 23
impairment; and 24
2. Referral pathways to community-based services and care planning resources; 25
(c) Risk factors for Alzheimer's disease and relate d dementias, including chronic 26
disease; 27
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(d) Risk-reduction strategies, including information on lifestyle interventions to 1
reduce dementia risk; 2
(e) The importance of early detection and diagnosis of Alzheimer's disease and 3
related dementias; 4
(f) Continuing education opportunities related to dementia care best practices; 5
(g) Information on approved diagnostics and treatments; and 6
(h) Resources for caregivers. 7
(2) The council shall complete the toolkit by December 1, 2027. The Office of 8
Dementia Services, in coordination with the Department for Public Health and with 9
support from the council, shall distribute the toolkit across healthcare sectors, including 10
but not limited to the following: 11
(a) Managed care organizations; 12
(b) Academic research institutions: 13
(c) Federally qualified health centers; 14
(d) Associations representing hospitals and health systems; 15
(e) Associations representing physicians and physician assistants; 16
(f) Associations representing nurses; 17
(g) Associations representing health care professionals; and 18
(h) Any other public or private organization, entity, or part of an organization or 19
entity the council deems necessary. 20