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HB193 • 2026

HEALTH/SICKLE CELL ANEM: Provides for the membership of the Sickle Cell Commission

HEALTH/SICKLE CELL ANEM: Provides for the membership of the Sickle Cell Commission

Healthcare
Enacted

This bill passed the Legislature and reached final enactment based on the latest official action.

Sponsor
Tammy Phelps
Last action
2026-05-29
Official status
Signed by the Governor - Act 533
Effective date
Not listed

Plain English Breakdown

The official source material does not provide specific details about adding new members or removing old rules. The bill amends and reenacts existing provisions but does not explicitly state additions or deletions beyond what is specified in the text.

Sickle Cell Commission Membership

This act amends the membership requirements for the Louisiana Sickle Cell Commission.

What This Bill Does

  • Amends and reenacts provisions of R.S. 40:1125.1(B)(1) regarding the appointment of members to the Louisiana Sickle Cell Commission.
  • Repeals certain sections (R.S. 40:1125.1(B)(1)(d) through (h) and (10)) related to membership requirements.

Who It Names or Affects

  • The governor of Louisiana
  • Members of the Senate

Terms To Know

Sickle Cell Commission
A group that works to improve care and support for people with sickle cell anemia in Louisiana.
Designee
Someone chosen by a person or organization to represent them on the commission.

Limits and Unknowns

  • The act does not specify how long members serve on the commission.
  • It is unclear what happens if an organization cannot meet new requirements for membership.

Amendments

These notes stay tied to the official amendment files and metadata from the legislature.

Filed

Plain English: The amendment requires organizations serving on the Louisiana Sickle Cell Commission to have a healthcare professional on their governance board.

  • Organizations must now include at least one healthcare professional in their governance board to be eligible for membership on the Louisiana Sickle Cell Commission.
  • The amendment text does not specify what happens if an organization fails to meet this requirement after the amendment is enacted.
Adopted

Plain English: HCAHB193 4465 1945 HOUSE COMMITTEE AMENDMENTS 2026 Regular Session Amendments proposed by House Committee on Health and Welfare to Original House Bill No.

  • HCAHB193 4465 1945 HOUSE COMMITTEE AMENDMENTS 2026 Regular Session Amendments proposed by House Committee on Health and Welfare to Original House Bill No.
  • 193 by Representative Phelps 1 AMENDMENT NO.
  • 1 2 On page 1, between lines 10 and 11, insert a set of asterisks "* * *" 3 AMENDMENT NO.
  • 2 4 On page 1, at the end of line 20, delete "Louisiana." insert "Louisiana or his designee." 5 AMENDMENT NO.
Draft

Plain English: HCAHB193 4465 1720 HOUSE COMMITTEE AMENDMENTS 2026 Regular Session Amendments proposed by House Committee on Health and Welfare to Original House Bill No.

  • HCAHB193 4465 1720 HOUSE COMMITTEE AMENDMENTS 2026 Regular Session Amendments proposed by House Committee on Health and Welfare to Original House Bill No.
  • 193 by Representative Phelps 1 AMENDMENT NO.
  • 1 2 On page 1, between lines 10 and 11, insert a set of asterisks "* * *" Page 1 of 1 CODING: Words in struck through type are deletions from existing law; words underscored are additions.
Filed

Plain English: The amendment to HB193 by Phelps is about agreeing with changes made in the Senate regarding the Sickle Cell Commission's membership.

  • Agrees with Senate amendments related to the composition and roles of the Sickle Cell Commission.
  • The official text does not provide specific details on what the Senate amendments entail, only that House members are voting to concur with them.
Adopted

Plain English: SCAHB193 3005 3304 SENATE COMMITTEE AMENDMENTS 2026 Regular Session Amendments proposed by Senate Committee on Health and Welfare to Engrossed House Bill No.

  • SCAHB193 3005 3304 SENATE COMMITTEE AMENDMENTS 2026 Regular Session Amendments proposed by Senate Committee on Health and Welfare to Engrossed House Bill No.
  • 193 by Representative Phelps 1 AMENDMENT NO.
  • 1 2 On page 1, line 16, before "The" insert "(a)" 3 AMENDMENT NO.
  • 2 4 On page 1, line 18, change "(a)" to "(i)" 5 AMENDMENT NO.
Draft

Plain English: SCAHB193 3005 3044 SENATE COMMITTEE AMENDMENTS 2026 Regular Session Amendments proposed by Senate Committee on Health and Welfare to Engrossed House Bill No.

  • SCAHB193 3005 3044 SENATE COMMITTEE AMENDMENTS 2026 Regular Session Amendments proposed by Senate Committee on Health and Welfare to Engrossed House Bill No.
  • 193 by Representative Phelps 1 AMENDMENT NO.
  • 1 2 On page 1, line 16, before "The" insert "(a)" 3 AMENDMENT NO.
  • 2 4 On page 1, line 18, change "(a)" to "(i)" 5 AMENDMENT NO.

Bill History

  1. 2026-05-29 H

    Effective date: 08/01/2026.

  2. 2026-05-29 H

    Signed by the Governor. Becomes Act No. 533.

  3. 2026-05-28 H

    Sent to the Governor for executive approval.

  4. 2026-05-27 S

    Signed by the President of the Senate.

  5. 2026-05-27 H

    Enrolled and signed by the Speaker of the House.

  6. 2026-05-26 H

    Read by title, roll called, yeas 96, nays 0, Senate amendments concurred in.

  7. 2026-05-25 H

    Scheduled for concurrence on 05/26/2026.

  8. 2026-05-19 H

    Received from the Senate with amendments.

  9. 2026-05-18 S

    Rules suspended. The amended bill was read by title, passed by a vote of 36 yeas and 0 nays, and ordered returned to the House. Motion to reconsider tabled.

  10. 2026-05-11 S

    Reported without Legislative Bureau amendments. Read by title and passed to third reading and final passage.

  11. 2026-05-07 S

    Committee amendments read and adopted. Read by title and referred to the Legislative Bureau.

  12. 2026-05-06 S

    Reported with amendments.

  13. 2026-04-22 S

    Read second time by title and referred to the Committee on Health and Welfare.

  14. 2026-04-21 S

    Received in the Senate. Read first time by title and placed on the Calendar for a second reading.

  15. 2026-04-20 H

    Read third time by title, roll called on final passage, yeas 95, nays 0. Finally passed, title adopted, ordered to the Senate.

  16. 2026-04-20 H

    Called from the calendar.

  17. 2026-04-14 H

    Scheduled for floor debate on 04/20/2026.

  18. 2026-04-14 H

    Notice given.

  19. 2026-03-24 H

    Read by title, returned to the calendar.

  20. 2026-03-23 H

    Scheduled for floor debate on 03/24/2026.

  21. 2026-03-23 H

    Read by title, amended, ordered engrossed, passed to 3rd reading.

  22. 2026-03-18 H

    Reported with amendments (12-0).

  23. 2026-03-09 H

    Read by title, under the rules, referred to the Committee on Health and Welfare.

  24. 2026-02-20 H

    First appeared in the Interim Calendar on 2/20/2026.

  25. 2026-02-18 H

    Under the rules, provisionally referred to the Committee on Health and Welfare.

  26. 2026-02-18 H

    Prefiled.

Official Summary Text

HEALTH/SICKLE CELL ANEM: Provides for the membership of the Sickle Cell Commission

Current Bill Text

Read the full stored bill text 
ENROLLED
ACT No. 5332026 Regular Session
HOUSE BILL NO. 193
BY REPRESENTATIVE PHELPS
1 AN ACT
2 To amend and reenact R.S. 40:1125.1(B)(1)(introductory paragraph) and (2) and to repeal
3 R.S. 40:1125.1(B)(1)(d) through (h) and (10), relative to the Louisiana Sickle Cell
4 Commission; to provide for the members of the Louisiana Sickle Cell Commission;
5 to provide for the initial meeting of the Louisiana Sickle Cell Commission; and to
6 provide for related matters.
7 Be it enacted by the Legislature of Louisiana:
8 Section 1. R.S. 40:1125.1(B)(1)(introductory paragraph) and (2) are hereby amended
9 and reenacted to read as follows:
10 §1125.1. Louisiana Sickle Cell Commission
11 * * *
12 B.(1) Thirteen members shall be appointed by the governor, subject to
13 Senate confirmation, as follows: The following members shall be appointed by the
14 governor and subject to Senate confirmation:
15 * * *
16 (2)(a) Two of the members shall be as follows: The following shall be
17 members of the commission:
18 (a) (i) The secretary of the Louisiana Department of Health or his designee.
19 (b) (ii) The Medicaid director of the Louisiana Department of Health or his
20 designee.
21 (iii) The executive director of the Sickle Cell Association of South Louisiana
22 or his designee.
Page 1 of 2
CODING: Words in struck through type are deletions from existing law; words underscored
are additions.
HB NO. 193 ENROLLED
1 (iv) The executive director of the Northeast Louisiana Sickle Cell Anemia
2 Technical Resource Foundation, Inc. or his designee.
3 (v) The executive director of the Sickle Cell Disease Association of
4 America, Inc., Northwest Louisiana Chapter or his designee.
5 (vi) The executive director of the Sickle Cell Anemia Research Foundation,
6 Alexandria or his designee.
7 (vii) The executive director of Southwest Louisiana Sickle Cell Anemia, Inc.
8 or his designee.
9 (b) Any member organization provided for in Items (iii) through (vii) of this
10 Subparagraph shall only serve on the commission if the organization has at least one
11 healthcare professional on the organization's governance board.
12 * * *
13 Section 2. R.S. 40:1125.1(B)(1)(d) through (h) and (10) are hereby repealed in their
14 entirety.
SPEAKER OF THE HOUSE OF REPRESENTATIVES
PRESIDENT OF THE SENATE
GOVERNOR OF THE STATE OF LOUISIANA
APPROVED:
Page 2 of 2
CODING: Words in struck through type are deletions from existing law; words underscored
are additions.