An Act designating April 5 as Okur-Chung Neurodevelopmental Syndrome Awareness Day

Plain English Breakdown

Using official source text because the generated explanation was unavailable or could not be confirmed against the official bill text.

An Act designating April 5 as Okur-Chung Neurodevelopmental Syndrome Awareness Day

An Act designating April 5 as Okur-Chung Neurodevelopmental Syndrome Awareness Day By Representative Kassner of Hamilton and Senator Tarr, a joint petition (accompanied by bill, House, No.

What This Bill Does

• An Act designating April 5 as Okur-Chung Neurodevelopmental Syndrome Awareness Day By Representative Kassner of Hamilton and Senator Tarr, a joint petition (accompanied by bill, House, No.
• 3366) of Kristin E.
• Kassner, Bruce E.
• Tarr and others for the issuance of an annual proclamation by the Governor to designate April 5 as Okur-Chung Neurodevelopmental Syndrome awareness day.

Limits and Unknowns

• This entry is temporarily using official source text because the generated explanation could not be confirmed against the official bill text during the last sync.

Official Summary Text

An Act designating April 5 as Okur-Chung Neurodevelopmental Syndrome Awareness Day
By Representative Kassner of Hamilton and Senator Tarr, a joint petition (accompanied by bill, House, No. 3366) of Kristin E. Kassner, Bruce E. Tarr and others for the issuance of an annual proclamation by the Governor to designate April 5 as Okur-Chung Neurodevelopmental Syndrome awareness day. State Administration and Regulatory Oversight.
Status:
Referred to House Committee on Bills in the Third Reading

Current Bill Text

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Bill H.3366

Chapter 6 of the General Laws, as appearing in the 2022 Official Edition, is hereby amended by inserting after section 15ZZZZZZ, the following section:-

Section 15AAAAAAA. The governor shall annually issue a proclamation setting apart April 5 as Okur-Chung Neurodevelopmental Syndrome (OCNDS) Awareness Day, to raise awareness of this rare genetic disorder caused by heterozygous mutations in the CSNK2A1 gene on chromosome 20 and manifesting as developmental delay or differences in brain function, which can be managed with early therapy, and recommending that the day be observed in an appropriate manner by the people.

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