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HB4169 • 2026

Health: diseases; rare disease advisory council; create. Amends 1978 PA 368 (MCL 333.1101 - 333.25211) by adding secs. 5135 & 5135a.

Health: diseases; rare disease advisory council; create. Amends 1978 PA 368 (MCL 333.1101 - 333.25211) by adding secs. 5135 & 5135a.

Active

The official status still shows this bill as active or still awaiting another formal step.

Sponsor
Jason Morgan (District 23), Emily Dievendorf (District 77), Veronica Paiz (District 10), Carrie Rheingans (District 47), Morgan Foreman (District 33), Matt Koleszar (District 22), Mike McFall (District 14), Jasper Martus (District 69), Jennifer Conlin (District 48), Mai Xiong (District 13), Penelope Tsernoglou (District 75), Erin Byrnes (District 15), Brenda Carter (District 53), Sharon MacDonell (District 56), Julie Brixie (District 73), Kimberly Edwards (District 12), Jason Hoskins (District 18), Julie Rogers (District 41), Reggie Miller (District 31), Denise Mentzer (District 61), Noah Arbit (District 20), Kelly Breen (District 21), Jimmie Wilson (District 32), Dylan Wegela (District 26), Donavan McKinney (District 11), Helena Scott (District 8), Stephen Wooden (District 81), Carol Glanville (District 84), Tonya Phillips (District 7), Phil Skaggs (District 80), Stephanie Young (District 16), Regina Weiss (District 5), Matt Longjohn (District 40), Samantha Steckloff (District 19), Angela Witwer (District 76), Gregory Alexander (District 98), Alabas Farhat (District 3)
Last action
2025-03-06
Official status
bill electronically reproduced 03/05/2025
Effective date
Not listed

Plain English Breakdown

The official source material does not provide specific details on the duties of the council or its members. The bill summary and digest text do not offer enough information to confirm these claims.

Creating a Rare Disease Advisory Council

This law creates an advisory council to help with rare diseases in Michigan.

What This Bill Does

  • Creates a new group called the Rare Disease Advisory Council.

Terms To Know

Rare Disease Advisory Council
A group that gives advice on how to help people with rare diseases.

Limits and Unknowns

  • The bill does not specify the exact duties of the council or who will be part of it.
  • It is unclear how the council will operate and what resources will be available to it.

Bill History

  1. 2025-03-06 HJ 24 Pg. 202

    bill electronically reproduced 03/05/2025

  2. 2025-03-05 HJ 23 Pg. 192

    introduced by Representative Rep. Jason Morgan

  3. 2025-03-05 HJ 23 Pg. 192

    read a first time

  4. 2025-03-05 HJ 23 Pg. 192

    referred to Committee on Health Policy

Official Summary Text

Health: diseases; rare disease advisory council; create. Amends 1978 PA 368 (MCL 333.1101 - 333.25211) by adding secs. 5135 & 5135a.