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SECOND REGULAR SESSION
HOUSE BILL NO. 3430
103RD GENERAL ASSEMBL Y
INTRODUCED BY REPRESENT A TIVE PRICE.
7282H.01I JOSEPH ENGLER, Chief Clerk
AN ACT
T o amend chapter 191, RSMo, by adding thereto one new section relating to a sickle cell
standing committee.
Be it enacted by the General Assembly of the state of Missouri, as follows:
Section A. Chapter 191, RSMo, is amended by adding thereto one new section, to be
2 known as section 191.1 17, to read as follows:
191.1 17 . 1. This section shall be known and may be cited as the "Lori Zena
2 Baker Act".
3 2. There is her eby established in the department of health and senior services a
4 "Sickle Cell Standing Committee" as a subcommittee of the Missouri genetic advisory
5 committee. The committee shall consist of the following members:
6 (1) One member who is a licensed physician with experience in the diagnosis and
7 tr eatment of sickle cell disease and who shall serve as chair of the committee;
8 (2) One member who has sickle cell disease or is a family member of a person
9 with sickle cell disease;
10 (3) One member with expertise in sickle cell disease r esear ch;
11 (4) One member fr om a leading sickle cell disease organization;
12 (5) One member with expertise in minority health; and
13 (6) One member fr om each hemoglobinopathy center that contracts with the
14 department.
15 3. The members of the committee shall be appointed by the dir ector of the
16 department of health and senior services. Members shall serve on the committee
17 without compensation or reim bursement for expenses incurr ed.
EXPLANA TION — Matter enclosed in bold-faced brackets [thus] in the above bill is not enacted and is
intended to be omitted from the law . Matter in bold-face type in the above bill is proposed language.
18 4. The committee shall:
19 (1) Assess the impact of sickle cell disease on urban communities in the state of
20 Missouri;
21 (2) Examine the existing services and r esources addr essing the needs of persons
22 with sickle cell disease; and
23 (3) Develop recomm endations to pr ovide educational services to schools on the
24 traits of sickle cell disease and its effects.
25 5. The committee shall include an examination of the following in its assessment
26 and recomm endations requi red under subsection 4 of this section:
27 (1) T rends in state sickle cell disease populations and their needs including, but
28 not limited to, the state's ro le in pr oviding assistance;
29 (2) Existing services and r esources ; and
30 (3) Needed state policies or res ponses including, but not limited to, dir ections for
31 the pr ovision of clear and coordinated services and supports to persons living with sickle
32 cell disease and strategies to addr ess any identified gaps in services.
33 6. The committee shall hold a minimum of one meeting in thr ee urban regio ns of
34 the state to seek public input.
35 7. The committee shall submit a rep ort of its findings and any recommendat ions
36 to the general assembly and the governor no later than December 31, 2027.
37 8. After December 31, 2027, the committee shall continue to meet at the requ est
38 of the chair and at a minimum of one time annually to continue the study of sickle cell
39 disease in this state, to consider the impact of the committee reco mmendations, and to
40 pr ovide an annual supplemental rep ort on the findings to the governor and the general
41 assembly .
✔
HB 3430 2