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S4190
SENATE, No. 4190
STATE OF NEW JERSEY
222nd LEGISLATURE
�
INTRODUCED MAY 11, 2026
Sponsored by:
Senator� ANGELA V. MCKNIGHT
District 31 (Hudson)
SYNOPSIS
���� Requires DHS to submit Medicaid State plan amendment
to federal government requesting approval to create Health Home Program for
certain Medicaid beneficiaries with sickle cell disease.
CURRENT VERSION OF TEXT
���� As introduced.
��
An Act
concerning Medicaid beneficiaries with sickle
cell disease, and supplementing Title 30 of the Revised Statues.
����
Be It
Enacted
by the Senate and General Assembly of
the State of New Jersey:
���� 1.��� a. The Commissioner of
Human Services shall submit a Medicaid State plan amendment to the Centers for
Medicare and Medicaid Services in the United States Department of Health and
Human Services to request approval of the establishment of a Health Home Program
for Medicaid beneficiaries who:
���� (1)�� have been diagnosed with
sickle cell disease; and
���� (2)�� are at risk for a second
chronic condition.
���� b.��� No later than 180 days following
the approval of the State Medicaid plan amendment submitted pursuant to
subsection a. of this section, the commissioner shall implement a Health Home
Program in accordance with this section and the applicable federal laws and
regulations regarding a Health Home Program.
���� c.���� As used in this section:
���� �Chronic condition� means any
physical or behavioral health condition that is persistent or recurring,
typically lasting 12 months or longer, and requires long-term management to
control symptoms
.
���� �Commissioner� means the Commissioner of Human Services.
���� �Health Home Program� means
the
optional Medicaid State plan
benefit which allows states to coordinate care for Medicaid
beneficiaries who have chronic conditions
pursuant to section 1945 to the Social Security Act (
42 U.S.C. s.1396w-4).
���� �Sickle cell disease� means an inherited blood disorder
affecting red blood cells that occurs when an individual has inherited a sickle
cell gene from each parent, as identified by a newborn screening or other
genetic test.
���� 2.��� The
Commissioner of Human Services, pursuant to the �Administrative Procedure Act,�
P.L.1968, c.410 (C.52:14B-1 et seq.), shall adopt such rules and regulations as
may be necessary to implement the provisions of this act.
���� 3.��� This act shall take
effect immediately.
STATEMENT
���� This bill directs the
Commissioner of Human Services (commissioner) to submit a Medicaid State plan
amendment to the Centers for Medicare and Medicaid Services in the United
States Department of Health and Human Services to request approval of the
establishment of a Health Home Program for Medicaid beneficiaries who: �1) have
been diagnosed with sickle cell disease; and 2) are at risk for a second
chronic condition.�
���� The Health Home Program is an
optional Medicaid State plan benefit,
established under the Affordable Care Act, which allows states to coordinate
care for Medicaid beneficiaries who have chronic conditions. �Under the
program, providers integrate and coordinate all primary, acute, behavioral
health, and long-term services and supports to treat the whole person.
� No
later than 180 days following the approval of the State Medicaid plan
amendment, the commissioner is required to implement a Health Home Program in
accordance with the bill, as well as the applicable federal requirements.�
���� Sickle cell disease is
an inherited blood disorder affecting red
blood cells that occurs when an individual has inherited a sickle cell gene
from each parent, as identified by a newborn screening or other genetic test.
�
Key chronic complications of the
disease include severe anemia, chronic pain, joint destruction, stroke, chronic
kidney disease, pulmonary hypertension, leg ulcers, and increased
susceptibility to infections.