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PRINTER'S NO. 3151
THE GENERAL ASSEMBLY OF PENNSYLVANIA
HOUSE RESOLUTION
No. 470
Session of
2026
INTRODUCED BY KRUEGER, HILL-EVANS, VENKAT, McNEILL, HOHENSTEIN,
FREEMAN, RIVERA, SANCHEZ, NEILSON AND PASHINSKI,
APRIL 7, 2026
REFERRED TO COMMITTEE ON HEALTH, APRIL 8, 2026
A RESOLUTION
Designating May 15, 2026, as "Prader Willi Syndrome Awareness
Day" in Pennsylvania.
WHEREAS, Prader Willi Syndrome (PWS) is a rare and complex
genetic disorder that affects multiple systems of the body and
requires lifelong medical care, specialized support and strong
community understanding; and
WHEREAS, This syndrome impacts more than 30 million citizens
of the United States; and
WHEREAS, One of the hallmark symptoms of the syndrome is
hyperphagia, which means that individuals with PWS never feel
full after eating, which often leads to obesity and
complications from obesity; and
WHEREAS, Other common symptoms include poor muscle tone,
distinct facial features, poor sucking reflex, behavioral
problems and cognitive impairment; and
WHEREAS, Raising awareness is essential to improving early
diagnosis, access to appropriate care and the overall quality of
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life for individuals and families impacted by PWS; and
WHEREAS, Regularly attending well-baby doctor's appointments
may help identify the syndrome earlier and lead to early
intervention to help the family navigate the complexity of PWS;
and
WHEREAS, Individuals can be carriers of PWS, meaning that the
individual may not show symptoms while the chromosomal
abnormality can be passed to the individual's children without
knowing of the risk; and
WHEREAS, May is recognized as Prader Willi Syndrome Awareness
Month each year to raise awareness and demonstrate support for
those in our communities who are suffering from the syndrome;
and
WHEREAS, This year is especially meaningful, as we celebrate
the formation of the Prader-Willi Alliance of Pennsylvania, a
newly established nonprofit organization dedicated to supporting
individuals with PWS and their families through education,
advocacy and connection across this Commonwealth; and
WHEREAS, The organization is committed to working alongside
families, health care providers, educators and policymakers to
ensure equitable access to services and informed care; therefore
be it
RESOLVED, That the House of Representatives designate May 15,
2026, as "Prader Willi Syndrome Awareness Day" in Pennsylvania.
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