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PRINTER'S NO. 974
THE GENERAL ASSEMBLY OF PENNSYLVANIA
SENATE RESOLUTION
No. 127
Session of
2025
INTRODUCED BY FLYNN, HUGHES, TARTAGLIONE, MARTIN, LAUGHLIN,
COSTA, PHILLIPS-HILL, STREET, SANTARSIERO, HAYWOOD,
CAPPELLETTI AND FONTANA, JUNE 20, 2025
REFERRED TO RULES AND EXECUTIVE NOMINATIONS, JUNE 20, 2025
A RESOLUTION
Designating June 23, 2025, as "Dravet Syndrome Awareness Day" in
Pennsylvania.
WHEREAS, Dravet syndrome is a rare and catastrophic form of
epilepsy that begins in infancy and is characterized by
prolonged and frequent seizures, developmental delays and a high
risk of sudden unexplained death in epilepsy; and
WHEREAS, Dravet syndrome affects approximately 1 in 15,700
individuals and, despite its rarity, has a profound impact on
the children and families who face its devastating effects; and
WHEREAS, This condition is caused primarily by a mutation in
the SCN1A gene; and
WHEREAS, While advances in genetic testing have improved
diagnosis, there remains no cure and treatment is often complex
and challenging; and
WHEREAS, Families affected by Dravet syndrome endure immense
emotional, physical and financial burdens, often requiring
around-the-clock care and facing limited treatment options; and
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WHEREAS, Increased public awareness and continued research
are essential to improving outcomes, expanding access to
therapies and ultimately finding a cure for Dravet syndrome; and
WHEREAS, June 23 has been recognized as "International Dravet
Syndrome Awareness Day" to honor all those impacted by this
condition and to encourage advocacy, education and research
efforts; and
WHEREAS, It is fitting that the Senate recognize and support
efforts to raise awareness of Dravet syndrome and affirm the
Commonwealth's commitment to supporting those affected;
therefore be it
RESOLVED, That the Senate designate June 23, 2025, as "Dravet
Syndrome Awareness Day" in Pennsylvania; and be it further
RESOLVED, That the Senate urge all residents to learn more
about this disorder and support those individuals and families
living with its challenges.
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