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PRINTER'S NO. 1877
THE GENERAL ASSEMBLY OF PENNSYLVANIA
SENATE RESOLUTION
No. 350
Session of
2026
INTRODUCED BY FLYNN, HUGHES, SANTARSIERO, PICOZZI, STREET,
MASTRIANO, HAYWOOD, PHILLIPS-HILL, COSTA, CAPPELLETTI AND
VOGEL, JULY 9, 2026
REFERRED TO RULES AND EXECUTIVE NOMINATIONS, JULY 9, 2026
A RESOLUTION
Recognizing June 23, 2026, as "Dravet Syndrome Awareness Day" in
Pennsylvania.
WHEREAS, Dravet syndrome is a rare, severe and lifelong form
of epilepsy that typically begins during the first year of life
and is characterized by frequent and prolonged seizures,
developmental delays, cognitive impairment, behavioral
challenges and other serious health complications; and
WHEREAS, Dravet syndrome is most commonly caused by a
mutation in the SCN1A gene and affects approximately 1 in 15,700
individuals worldwide; and
WHEREAS, Individuals living with Dravet syndrome face a
significantly increased risk of injury, hospitalization and
premature death, including from sudden unexpected death in
epilepsy; and
WHEREAS, There is currently no cure for Dravet syndrome, and
treatment often requires complex medical management and
substantial support from families, caregivers and health care
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providers; and
WHEREAS, Families affected by Dravet syndrome frequently
experience significant emotional, physical and financial
challenges while caring for loved ones with the disorder; and
WHEREAS, Continued research, public awareness, early
diagnosis and access to specialized care are essential to
improving outcomes and quality of life for individuals living
with Dravet syndrome; and
WHEREAS, June 23 is recognized internationally as "Dravet
Syndrome Awareness Day" to promote understanding of the disorder
and support ongoing efforts to advance treatment and ultimately
find a cure; therefore be it
RESOLVED, That the Senate recognize June 23, 2026, as "Dravet
Syndrome Awareness Day" in Pennsylvania; and be it further
RESOLVED, That the Senate encourage all residents of this
Commonwealth to increase awareness and understanding of Dravet
syndrome and to support individuals, families, caregivers,
advocates and researchers working to address the challenges
associated with this disorder.
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