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HB2092 • 2026

Health, Dept. of

AN ACT to amend Tennessee Code Annotated, Title 68, relative to Charcot-Marie-Tooth Disease.

Active

The official status still shows this bill as active or still awaiting another formal step.

Sponsor
Powers, Hensley
Last action
2026-04-08
Official status
Placed on s/c cal Finance, Ways, and Means Subcommittee for 4/14/2026
Effective date
Not listed

Plain English Breakdown

The official source material does not provide specific details about the budget allocation for different parts of the outreach campaign.

Charcot-Marie-Tooth Disease Awareness Act

This bill requires the Tennessee Department of Health to create an outreach campaign about Charcot-Marie-Tooth (CMT) disease and establish a hotline for people to report their diagnosis or donate to research, with the campaign ending on July 1, 2027.

What This Bill Does

  • Requires the Tennessee Department of Health to make a public awareness campaign about CMT disease using different ways like print ads, radio spots, social media posts, and TV announcements.
  • The department must set up a free phone line or online system for people to report their diagnosis or donate money to help with research on CMT.
  • Lists five areas the outreach campaign should cover: data security, community engagement, travel costs, materials needed, and program evaluation.

Who It Names or Affects

  • People who have Charcot-Marie-Tooth disease
  • The Tennessee Department of Health

Terms To Know

Charcot-Marie-Tooth Disease (CMT)
A group of inherited conditions that damage the nerves in the arms and legs, leading to smaller muscles and problems with walking or feeling in the feet.
Outreach campaign
An effort by an organization to spread information about a topic through various methods like ads, social media posts, and public service announcements.

Limits and Unknowns

  • The bill only requires the outreach campaign until July 1, 2027.
  • It does not specify how much money will be spent on each part of the campaign.

Bill History

  1. 2026-04-08 Tennessee General Assembly

    Placed on s/c cal Finance, Ways, and Means Subcommittee for 4/14/2026

  2. 2026-04-01 Tennessee General Assembly

    Recommended for passage, refer to Senate Finance, Ways, and Means Committee

  3. 2026-03-25 Tennessee General Assembly

    Placed behind the budget

  4. 2026-03-25 Tennessee General Assembly

    Placed on Senate Health and Welfare Committee calendar for 4/1/2026

  5. 2026-03-18 Tennessee General Assembly

    Placed on s/c cal Finance, Ways, and Means Subcommittee for 3/25/2026

  6. 2026-03-18 Tennessee General Assembly

    Reset on Final calendar of Senate Health and Welfare Committee

  7. 2026-03-17 Tennessee General Assembly

    Assigned to s/c Finance, Ways, and Means Subcommittee

  8. 2026-03-17 Tennessee General Assembly

    Rec. for pass; ref to Finance, Ways, and Means Committee

  9. 2026-03-17 Tennessee General Assembly

    Placed on Senate Health and Welfare Committee calendar for 3/18/2026

  10. 2026-03-17 Tennessee General Assembly

    Action deferred in Senate Health and Welfare Committee to 3/18/2026

  11. 2026-03-11 Tennessee General Assembly

    Placed on cal. Health Committee for 3/17/2026

  12. 2026-03-11 Tennessee General Assembly

    Rec. for pass by s/c ref. to Health Committee

  13. 2026-03-11 Tennessee General Assembly

    Placed on Senate Health and Welfare Committee calendar for 3/17/2026

  14. 2026-03-11 Tennessee General Assembly

    Action deferred in Senate Health and Welfare Committee to 3/18/2026

  15. 2026-03-04 Tennessee General Assembly

    Placed on s/c cal Health Subcommittee for 3/11/2026

  16. 2026-03-04 Tennessee General Assembly

    Action Def. in s/c Health Subcommittee to 3/11/2026

  17. 2026-03-04 Tennessee General Assembly

    Placed on Senate Health and Welfare Committee calendar for 3/11/2026

  18. 2026-02-25 Tennessee General Assembly

    Placed on s/c cal Health Subcommittee for 3/4/2026

  19. 2026-02-05 Tennessee General Assembly

    Assigned to s/c Health Subcommittee

  20. 2026-02-05 Tennessee General Assembly

    P2C, ref. to Health Committee

  21. 2026-02-05 Tennessee General Assembly

    Passed on Second Consideration, refer to Senate Health and Welfare Committee

  22. 2026-02-04 Tennessee General Assembly

    Intro., P1C.

  23. 2026-02-04 Tennessee General Assembly

    Sponsor(s) Added.

  24. 2026-02-02 Tennessee General Assembly

    Filed for introduction

  25. 2026-02-02 Tennessee General Assembly

    Introduced, Passed on First Consideration

  26. 2026-02-02 Tennessee General Assembly

    Filed for introduction

Official Summary Text

Charcot-Marie-Tooth disease
(CMT)
is a group of inherited conditions
passed down through families
that cause nerve damage.

This damage mainly is in the nerves of the arms and legs,
and
causes smaller, weaker muscles.

It

may
also
cause trouble walking, and loss of feeling in the legs and feet.

People with
CMT
most often get symptoms in the teen years or early adulthood
, b
ut symptoms may start in midlife or in the toddler years.

Until July 1, 2027, this bill requires

t
he department of health
to
create an outreach campaign utilizing print, radio, social media, or television public service announcements, advertisements, posters, or other materials regarding the ongoing research of
CMT
in
this state
.

The department
must
establish and promote a toll-free telephonic or web-based hotline for a person to report the person's diagnosis or
to
donate to the research of such disease.

The department
must
include the following categories for
the outreach campaign:



Data portal development and security
.


Community outreach and public service announcements
.


Honoraria, strategy, and travel
.


Materials, toolkits, and media
.


Program evaluation and contingency.

Current Bill Text

Read the full stored bill text
SENATE BILL 2349
By Hensley

HOUSE BILL 2092
By Powers
HB2092
012122
- 1 -

AN ACT to amend Tennessee Code Annotated, Title 68,
relative to Charcot-Marie-Tooth Disease.

BE IT ENACTED BY THE GENERAL ASSEMBLY OF THE STATE OF TENNESSEE:
SECTION 1.
(a) The department of health shall create an outreach campaign utilizing print,
radio, social media, or television public service announcements, advertisements,
posters, or other materials regarding the ongoing research of Charcot-Marie-Tooth
Disease in Tennessee.
(b) The department of health shall establish and promote a toll-free telephonic or
web-based hotline for a person to report the person's diagnosis of Charcot-Marie-Tooth
Disease or donate to the research of such disease.
(c) The department of health shall include the following categories for the
outreach campaign:
(1) Data portal development and security;
(2) Community outreach and public service announcements;
(3) Honoraria, strategy, and travel;
(4) Materials, toolkits, and media; and
(5) Program evaluation and contingency.
(d) The department of health shall conclude the outreach campaign on July 1,
2027.
SECTION 2. This act takes effect July 1, 2026, the public welfare requiring it.