Plain English Breakdown
The exact budget allocation for each category of the outreach campaign is not provided in the official bill text.
Act for Charcot-Marie-Tooth Disease Awareness
This bill requires the Tennessee Department of Health to create an outreach campaign about Charcot-Marie-Tooth (CMT) disease and a hotline for people to report their diagnosis or donate to research, with funding until July 1, 2027.
What This Bill Does
- Requires the department of health to make materials and announcements about CMT disease using various media like print, radio, social media, and television.
- Creates a free phone line or website where people can share if they have CMT or give money for research.
- Lists five areas that need funding: data portal development and security, community outreach, honoraria, strategy, travel costs, materials, toolkits, and media, program evaluation, and contingency planning.
- Sets an end date of July 1, 2027, for the awareness campaign.
Who It Names or Affects
- People with Charcot-Marie-Tooth disease
- The Tennessee Department of Health
Terms To Know
- Charcot-Marie-Tooth Disease (CMT)
- A group of inherited conditions that damage the nerves in the arms and legs, causing smaller muscles and trouble walking.
- Outreach campaign
- Activities like ads, posters, or announcements to spread information about CMT disease.
Limits and Unknowns
- The bill does not specify the exact amount of funding for each category.
- It is unclear if there are any penalties for non-compliance with this act.
- This bill only affects Tennessee and its residents.