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89(R) SR 429 - Enrolled version - Bill Text
SENATE RESOLUTION NO. 429
WHEREAS, Rett Syndrome Awareness Month is being observed
in October 2025 to promote better understanding of this
developmental disorder; and
WHEREAS, Every two hours, a child is born with Rett
syndrome, a rare postnatal genetic neurological disorder that
occurs almost exclusively in females; symptoms first appear in
infants and toddlers between the ages of 6 to 18 months, followed
by a period of regression when motor skills are gradually lost
over time; and
WHEREAS, Individuals with Rett syndrome require assistance
with daily tasks throughout their lives; more than half of those
diagnosed with the condition lose their ability to walk, and many
suffer from impairments such as loss of speech, seizures,
scoliosis, and irregular breathing patterns; one of the most
distinctive signs of Rett syndrome is near constant repetitive
hand movements while awake; and
WHEREAS, Biomedical research suggests that neurological
symptoms may be reversed even decades after diagnosis;
scientists discovered the gene that causes Rett syndrome in 1999,
and there have since been several breakthroughs in developing a
cure; the first FDA-approved treatment launched in 2023; and
WHEREAS, The International Rett Syndrome Foundation is one
of the world's largest private sources of funds for Rett syndrome
research; the organization works to address the full spectrum of
the disorder while advocating for policies that enhance the
quality of life for patients and their families; and
WHEREAS, Rett syndrome is a serious and life-changing
condition, and Rett Syndrome Awareness Month serves as a means of
rallying support for vital research and resources that can help
improve the outlook for those living with the disorder; now,
therefore, be it
RESOLVED, That the Senate of the State of Texas, 89th
Legislature, hereby recognize October 2025 as Rett Syndrome
Awareness Month and encourage all Texans to learn more about
the condition.
Middleton
________________________________
President of the Senate
I hereby certify that the
above Resolution was adopted by
the Senate on April 24, 2025.
________________________________
Secretary of the Senate
________________________________
Member, Texas Senate