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AR12: Resolution Text
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2025 - 2026 LEGISLATURE
LRB-6018/1
CMH:cjs
2025 ASSEMBLY RESOLUTION 12
February 6, 2026 - Introduced by Representatives
Dittrich
,
Brown
,
Clancy
,
Fitzgerald
,
Gundrum
,
Joers
,
Madison
,
McCarville
,
Miresse
,
Moses
,
Murphy
,
O'Connor
,
Ortiz-Velez
,
Sinicki
,
Snodgrass
,
Tittl
,
Vining
and
Knodl
. Referred to Committee on Rules.
AR12,1,1
1
Relating to:
observing February 28, 2026, as Rare Disease Day in Wisconsin.
AR12,1,4
2
Whereas, there are nearly 10,000 diseases and conditions considered rare
3
(each affecting fewer than 200,000 Americans) in the United States, according to
4
the National Institutes of Health (NIH); and
AR12,1,6
5
Whereas, while each of these diseases may affect small numbers of people,
6
rare diseases as a group affect approximately 25 to 30 million Americans; and
AR12,1,8
7
Whereas, many rare diseases are serious and debilitating conditions that have
8
a significant impact on the lives of those affected; and
AR12,1,12
9
Whereas, while more than 800 drugs and biologics have been approved for the
10
treatment of rare diseases according to the Food and Drug Administration (FDA),
11
millions of Americans still have rare diseases for which there is no approved
12
treatment; and
AR12,2,2
13
Whereas, individuals and families affected by rare diseases often experience
1
problems such as diagnosis delay, difficulty finding a medical expert, and lack of
2
access to treatments or ancillary services; and
AR12,2,6
3
Whereas, while the public is familiar with some rare diseases, many patients
4
and families affected by less widely known rare diseases bear a large share of the
5
burden of funding research and raising public awareness to support the search for
6
treatments; and
AR12,2,8
7
Whereas, residents of Wisconsin are among those affected by rare diseases
8
because nearly one in 10 Americans have rare diseases; and
AR12,2,11
9
Whereas, the National Organization for Rare Disorders (NORD) is organizing
10
a nationwide observance of Rare Disease Day on February 28, 2026; now, therefore,
11
be it
AR12,2,13
12
Resolved by the
assembly
, That
February 28, 2026, will be observed as Rare
13
Disease Day in Wisconsin.
AR12,2,14
14
(end)
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